Life with Lennon: A Spina Bifida Journey

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The Journey Begins: One Month in One Post

March 28: ANATOMY SCAN Emma Grace went to her 18 week appointment where they do the anatomy scan of the baby.  Her doctor was concerned about a few things that he saw on...

What is Spina Bifida?

Are you asking: What is Spina Bifida?? Spina Bifida is a neural tube birth defect that occurs within the first month of conception when the backbone that protects the...

Texas Children’s Hospital – Final Diagnosis

Let me start by introducing Stephanie, Emma Grace and Lennon’s nurse who will be with them through this whole process as a coordinator.  She basically tells us...

Surgery: Fetoscopic Myelomeningocele Repair

What is it?  This is a fairly new intrauterine surgery that has been around since 2016 and replaces the ‘open surgery’ from 2011 that required a sizable...

Surgery Day & Hospital Stay

SURGERY DAY ~ Tuesday, May 21 Start Time: 11:32am            End Time: 4:25pm Emma Grace did great!!! She is a true example of what unconditional, selfless love is!!! I’m...